Program Specialist, Rare Diseases

Program Specialist, Rare DiseaseDirect Relief, a humanitarian aid organization, active in more than 100 countries and all 50 US states and territories, is improving the health and lives of people affected by poverty and/or emergencies. Direct Relief has built its reputation over 70 years, consistently earning top recognition from independent charity evaluators. We are the 3rd largest US charity and Forbes recently ranked Direct Relief #5 in their top 100 Charities.

Charity Navigator awarded Direct Relief a perfect score of 100. Direct Relief's vision is to be the world's leading, most transparent, and most efficient provider of charitable medical resources to people most in need of assistance. Direct Relief is a nongovernmental, nonsectarian, and not-for-profit provider to people and communities regardless of politics, religious beliefs, ethnic identity or ability to pay.The Program Specialist, Rare Disease is responsible for the operational needs related to Direct Relief's work supporting patients with Rare Diseases, including managing order fulfillment processes, oversight of logistics processes and shipment coordination, coordinating with external partner networks, forecasting product needs, and preparing reports.

The position will collaborate closely with Direct Relief's global rare disease healthcare provider network, healthcare professionals, and healthcare manufacturers to support patients with rare diseases enrolled in Direct Relief's programs.This position is not eligible for immigration or visa sponsorshipKey Duties and Responsibilities:Manage the order fulfillment process for the delivery of material aid to partnersCoordinate with other Rare Disease Program staff to schedule shipment activity based on patients' needs and geographic locationDevelop shipping documentation to facilitate the importation processHelp vet new Rare Disease partner applicants and maintain partner accounts in CRM.Develop awareness of customs and logistics processesCollaborate with other teams across the organization as needed for efficient and timely processing of product donations and shipmentsManage Logistics relationships specific to the Rare Disease Programs, including invoice submissions and reportingProvide overall customer/partner support answering questions via phone and email, as neededMonitor medical supply inventory for various Rare Disease ProgramsCommunicate with donor company staff to relay product forecasting needs in line with programmatic activitiesAssist with Donor report preparation on a monthly, quarterly, yearly basisRepresent DR at collaborative meetings, conferences, and other forumsPrepare monthly shipping reports and usage reports for programmatic reportingPerform other duties to support the overall growth and development of the organizationRequired Knowledge, Skills, and Abilities:Bachelor's degree or equivalent work experience; familiar with computers and standard software applications such as Microsoft Windows, Word, and ExcelSAP or similar ERP system preferredWorking knowledge of CRM systemsProficient in ExcelMulti-tasking skills and the ability to manage and prioritize multiple projectsAble to provide a high level of customer service to our partnerAbility to interact and manage external parties with professionalism, discretion, and understanding of patient privacyStrong communication skills, both written and oralDetail oriented with the ability to take initiative and work independentlyAbility to travel as needed, including to disaster areasPhysical Demands:Prolonged periods of sittingMust pass (clear) toxicology screening