Head of Community Marketing

• Define and own the community marketing strategy across virtual channels including social, online groups, content, and email


• Define and own the community marketing strategy across in-person channels including events, conferences, meetups, and fundraisers


• Develop original campaign concepts to activate and grow patient and caregiver communities


• Build and own relationships with patient advocacy groups and foundations across hundreds of rare diseases


• Strengthen existing partnerships and cultivate new patient advocacy group and foundation relationships


• Test and iterate referral and email outreach, partnerships and sponsorships, events, participant compensation, and paid media


• Track the impact of community efforts on patient acquisition and CAC


• Adjust strategy based on performance data


• Build scalable, repeatable playbooks for community-driven growth


• Represent Probably Genetic at conferences, fundraisers, and community events


• Travel regularly for events and partner meetings


• Help Probably Genetic grow an engaged community of patients, families, and caregivers

Requirements

• 5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement


• Track record of building or significantly growing a community with active participation, member-generated content, referrals, and brand-organized activity


• Creative instincts for community activation from concept to execution


• Fluency in virtual and in-person community building


• Comfort using data to guide decisions and identify growth, engagement, and CAC drivers


• Genuine empathy for engaging a sensitive, high-stakes population


• Strong written and verbal communication skills


• Willingness to travel regularly for events and partner meetings


• Rare disease landscape familiarity or existing rare disease community relationships are not required


• Good person who is empathetic and patient-focused


• Motivation to have a lasting, positive impact on humanity


• Comfort in a fast-paced, ambiguous environment with rapid change


• Action-oriented approach and excitement to build a company from the ground up


• Must be legally authorized to work in the United States


• Must be willing and able to work in-office Tuesday-Thursday each week in San Francisco


• Must be willing and able to relocate to the Bay Area without relocation assistance if not currently based there

Core Competencies

Demonstrates expertise in community marketing strategy across both virtual and in-person channels, with a strong focus on building relationships and engaging patient and caregiver communities. Utilizes data-driven decision-making to optimize community growth and engagement.

Highest-signal resume keywords

• Community Marketing Strategy


• Data-Driven Decision Making


• Relationship Building


• Campaign Development


• Event Representation

Hard Skills

• Community-Led Growth


• Campaign Concept Development


• Patient Acquisition Tracking


• Referral Outreach


• Email Marketing

Soft Skills

• Empathy


• Strong Communication Skills


• Action-Oriented Approach


• Creativity


• Adaptability

Industry Keywords

• Patient Advocacy Groups


• Rare Diseases


• Community Engagement


• Member-Generated Content


• Fundraisers