Duchenne Nurse Educator

Why Sarepta? Why Now?

The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne.

We’re looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.

What Sarepta Offers

At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work‑life resources designed to support people in the following areas:

• Physical and Emotional Wellness
• Financial Wellness
• Support for Caregivers

The Importance of the Role

The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team environment. The DNE will support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process of our approved therapies, and Sarepta patient support programs. This role develops relationships with HCPs, patients, and caregivers to support both the HCPs and the families through their journey on therapy. The DNE also collaborates closely with cross‑functional partners to ensure ongoing compliance with therapy. This position covers Washington, Oregon, Northern California, Utah, Montana, Idaho, Wyoming, and Alaska.

The DNE is assigned to special projects as required, such as providing nurse triage support during 24‑hour on‑call shift coverage. Triage support utilizes the nursing process to liaise with patient care teams to evaluate patient safety needs over the telephone. The DNE serves as a connection between patient care teams and an experienced physician with deep Duchenne and precision medicine expertise, providing guidance to patient care teams while adhering to organizational policies, procedures, and guidelines.

The Opportunity to Make a Difference

• Educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (genotype, deletions, disease process, etc.)
• Stay current on the DMD environment.
• Collaborate with internal cross‑functional partners and external partners to ensure ongoing support to HCPs, patients, and families.
• Present to audiences compliantly.
• Conduct programs for disease state awareness.
• Assist in improving the infusion experience for DMD patients by providing ongoing support to infusion nurses and sharing best practices.
• Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
• Support patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings, medical offices, and home health agencies, as necessary.
• Other related duties as required.
• Special projects include triage nursing support: triage telephone calls from patient care teams requiring medical guidance post‑gene therapy treatment during rotating 24‑hour on‑call shifts, intake and interpretation of medical information to triage calls appropriately, liaison between patient’s care teams and physician, documentation of calls according to established guidelines (PV reporting), directing the patient care team to the proper Customer Service Center based on the topic of the call. Requires day, night, and weekend on‑call coverage.

More about You

• Registered Nurse with a bachelor’s degree (BSN/BS/BA) from an accredited school.
• At least 5 years of relevant experience; infusion, neuromuscular, pediatric neurology, or other specialty experience preferred.
• Prefer 2 or more years’ experience in the pharmaceutical/biotech industry.
• Highly interested in educating people on the disease state of Duchenne and working with health care professionals to support patients and families.
• Exceptional presentation, verbal, and written communication skills.
• Demonstrates team‑based skills collaborating with cross‑functional partners, both internally and externally.
• Competent and comfortable presenting in group and individual settings, live and virtually, with and without technology.
• Empathetic, friendly, and relatable, with effective communication skills.
• Comfortable speaking with patients/families.
• Willingness to work as part of a team in a demanding environment.
• Embraces continuous learning and seeks knowledge.
• Valid driver’s license and in good standing.
• Requires rotating on‑call coverage 24 hours/7 days per week.
• Ability to travel, including ground and air transportation, up to 60% within assigned territory. Must be able to travel to meetings, training, and other programs as necessary.

Preferred

• Bilingual English/Spanish preferred.

What Now?

We’re always looking for solution‑oriented, critical thinkers. If you’re comfortable with ambiguity and candor, relish challenging yourself, and place kindness and integrity at the forefront of how you approach your peers and work, we encourage you to apply.

Hybrid: You will be expected to work on site at one of Sarepta’s facilities in the United States and/or attend company‑sponsored in‑person events from time to time. The targeted salary range for this position is $136,000‑$170,000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sarepta’s compensation philosophy and considers factors including, but not limited to, education, training, experience, external market conditions, criticality of role, and internal equity.

Candidates must be authorized to work in the U.S.

Sarepta Therapeutics offers a competitive compensation and benefit package. Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e‑Verify.