Cure HHT is seeking a Director of Registry Operations to lead CHORUS and HHT Connect, driving governance, data access, and multi-site coordination. You will oversee IRB communications, vendor management with Studytrax, and data-sharing frameworks, while guiding recruitment and data delivery in a remote environment.
The role requires 3–5+ years in rare-disease registries or multi-site trials, strong stakeholder engagement, and experience with DUAs and governance processes.
#J-18808-LjbffrDirector, Registry Operations — Remote, Growth & Impact in northern at Unknown Company
This position is listed as full time and able to be worked remotely.